ARSACS, Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay, is a rare neurodegenerative disease caused by a mutation in the SACS gene. It often combines symptoms of multiple sclerosis, muscular dystrophy, and cerebral palsy, such as muscle spasticity, cerebellar ataxia and peripheral neuropathy. Currently, there is no cure, and there is limited research due to its rarity.
ARSACS was first seen in the Charlevoix-Saguenay region of Quebec, Canada but is now known to affect people around the entire world. Our goal is to help raise awareness for this disease and support new innovative research here in the United States. We hope you will join us on this journey to cure ARSACS!
We've partnered with the Krogan Lab at the University of California
San Francisco to research new treatment modalities for ARSACS. If you'd like to learn more and support our cause, please follow the link below.
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